Privacy Notice

Rare Blood Connect keeps a register of people willing to donate rare blood, and matches them to patients who need it. That only works if people trust us with their details, so this page sets out exactly what we hold and what we do with it.

What we collect

If you register as a donor

• Your name, date of birth and gender.
• A contact number.
• Your city, postal code and country — close enough to match you to a nearby hospital, not your street address.
• Your blood group, as you report it.
• Any laboratory report or certificate you choose to upload.
• Which consents you gave, and when.

If you register a patient

• The patient’s name and blood group.
• A contact number and general location.
• The name and contact details of the treating doctor, blood bank or pathologist you nominate.

If you contact us

• Your name, email address, subject and message. Nothing else.

If you have an account

• Your email address and a hashed password. We never store your password itself.

Why we collect it

To run the register and nothing else: to identify who may be able to help a given patient, to contact you when that happens, to confirm a request is genuine with the doctor you nominate, and to answer you when you write to us.

We do not sell your data, share it with advertisers, or use it for marketing.

Who can see it

• Coordinators handling a request. Their view is masked by default — a reference, a status, a city and a blood group — and revealing contact details is a separate, deliberate action.
• The doctor or organisation you nominate, when we contact them to confirm a request.
• Nobody else. There is no public list of donors or patients on this site, and there is not going to be one.

Anonymity and controlled disclosure

Donors and patients never see each other’s details. A coordinator sits between the two sides of every match and is the only person who sees both.

When someone on the team does need your contact details in order to help, they have to ask for them explicitly. That request is recorded against their name and the time it happened, whether or not it was granted. Where a disclosure goes outside the team — to a hospital arranging a donation, for instance — you are asked first, told exactly what will be shared and with whom, and you can say no.

How long we keep it

Our retention position is not yet final, and we would rather say so than publish a number we have not committed to. What we can state now: if you withdraw, you are removed from any future search immediately. A minimal record of the withdrawal itself is kept so that we can prove we honoured it.

Your rights

• See what we hold about you, and get a copy.
• Correct it — you can edit most of it yourself from your account.
• Withdraw from the register at any time.
• Object or complain about how we have handled your data.

Withdrawing

From your account, at any time, without giving a reason. You will not be contacted about donations again. If you would rather we deleted everything, ask us and we will tell you plainly what we can remove and what we are obliged to keep.

Cookies

We use only the cookies needed to keep you signed in and to keep the site secure. We do not use advertising or cross-site tracking cookies.

Contacting us about your data

Write to us through the contact page. A named data contact and postal address will be added here before launch.